Quality of Life with Idiopathic Subglottic Stenosis

Today, I’m reflecting upon just how poor my quality of life has become, secondary to living with subglottic stenosis. To be sure, my situation could be much worse than it actually is.

Nevertheless, I am deeply mourning the woman I used to be. I miss simply getting dressed without gasping for air.

Today has been unseasonably warm and mild. I blinked back tears when I saw several cyclists out today. As a teenager, I used to cycle up to 20 miles per day. I genuinely miss being fit.

I long to be able to get back into exercising on a regular basis, for multiple reasons. I am significantly overweight right now.

Not being able to exercise on a regular basis, along with needing to take several daily prescription medications that cause weight gain, has been a most miserable combination.

Increasingly, I’m getting progressively more short of breath, even with minimal exertion. I’m also feeling very lightheaded at times.

I desperately need long-term relief from my chronic airway problems. My quality of life has been severely diminished by idiopathic subglottic stenosis.

So, I’m now actually looking forward to seeing a Cleveland Clinic specialist regarding pursuing a tracheal re-section. I really hope that I receive encouraging news about pursuing a much more aggressive surgical option.

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