Like everyone else, those of us who are living with chronic illnesses need affirmation. We need to feel heard. This is especially true when our appearances don’t reveal the actual extent of our distress.
We’re painfully aware that there is no definitive cure for our conditions. Believe me, we have been very strongly motivated to find one, were it at all possible.
Before you offer well-intended suggestions for how to deal with chronic illness, please just listen to us. Please simply validate that life is especially difficult when your very own body has chosen to betray you.