When you’re living with multiple chronic illnesses, it’s not realistic to expect that you’ll be able to maintain full-time employment. Nevertheless, I attempted to do just that, working full-time as a clinical health psychologist for many years, despite juggling multiple autoimmune disorders.
Currently, I am honestly finding it very challenging to even work part-time. The effective management of comorbid medical conditions involves the expenditure of considerable time and energy. There are multiple medical appointments to schedule, several appointments to attend regularly, ongoing laboratory work and tests to complete, plus long-term prescriptions to continue to refill. Factor in the additional demands associated with insuring adequate coverage for health care, and you soon begin to appreciate that being chronically ill is, after all, a full-time job. All of these tasks must be completed in order to increase the probability of maintaining one’s current health status, as well as to decrease the chances of disease progression. Doing so in a body that fatigues easily is incredibly difficult to do consistently.
Although I no longer work full-time, I never question what I am going to do on any given day. I feel extremely busy. I sincerely try to remain as active as possible each day, but I need to continually intersperse periods of activity with rest.